Mr. Delaney in 1985 founded Project Inform, a leading national HIV treatment and public policy information and advocacy organization based in San Francisco, and served as its Director until 2008. He was a member of the NIAID AIDS Research Advisory Committee from 1991 to 1995, served on NIAID’s National Advisory Allergy and Infectious Disease Council from 1995 to 1998, and also has served in other advisory roles for the Institute.
The NIAID Director’s Special Recognition Award gave an award to Mr. Delaney citing “extraordinary contributions to framing the HIV research agenda, particularly with regard to antiretroviral drugs and access to treatment; exceptional efforts on behalf of HIV-infected people; and wise counsel while serving on NIAID advisory committees.”
“Millions of people are now receiving life-saving antiretroviral medications from a treatment pipeline that Marty Delaney played a key role in opening and expanding,” says NIAID Director Anthony S. Fauci, M.D. “Without his tireless work and vision, many more people would have perished from HIV/AIDS. He is a formidable activist and a dear friend. It is without hyperbole that I call Marty Delaney a public health hero.”
“As a treatment advocate and activist, Marty always has been keenly analytical, well-informed, articulate, persistent, tough-minded, gracious and fair,” Dr. Fauci adds. “With this award, NIAID thanks Marty for his advice, his boldness in asking hard questions (and demanding cogent answers), and for the countless hours he has devoted to helping NIAID, formally and informally, in our work in the fight against HIV/AIDS.”
Mr. Delaney was one of the founders of the community-based HIV research movement and, through his work at Project Inform, led the way to HIV treatment education becoming widely available to patients and medical providers.
He was a leader of the movement to accelerate Food and Drug Administration approval of promising drugs and a key player in the development of today’s widely used Accelerated Approval regulations and Parallel Track system for providing experimental drugs to seriously ill people preceding formal FDA approval.
In recent years, among many other activities, Mr. Delaney has led the Fair Pricing Coalition to improve the accessibility of HIV medications, and has advocated for an aggressive research agenda to find a cure for AIDS.
When the final history of AIDS is written, there is no question that Martin Delaney will be one of the key figures who brought this great human tragedy to an end,” said Dana Van Gorder, Project Inform’s Executive Director. “Marty rose brilliantly to the challenge of persuading sometimes reluctant government agencies, researchers, and pharmaceutical companies to respond in a compassionate and urgent way to the needs of thousands of people dying of AIDS. The fact that we now benefit from a very strong arsenal of medications to treat HIV infection, and from information about how to use them effectively, is largely attributable to this great man. Those of us living with HIV feel deeply the loss of our chief guardian and friend.”
Delaney is an internationally recognized leader of the movement to represent the needs of HIV patients in the process of drug discovery and to accelerate FDA approval of promising drugs. He was a key player in the development of today’s widely used Accelerated Approval regulations and the Parallel Track system for providing experimental drugs to seriously ill people prior to formal approval by the FDA. He was one of the founders of the community-based HIV research movement and, through Project Inform, led the way to an unprecedented level of HIV treatment education available to both patients and caregivers. Delaney also led the Fair Pricing Coalition, which negotiates with industry to assure that HIV medications are affordable and accessible, and he was Chair of the Board of the Foundation for AIDS Research.
Delaney has been a constructive critic of federal, academic, and industry AIDS research efforts and a featured voice in the media and at scientific conferences on AIDS-related topics. His writings have appeared in prestigious medical publications includingThe Journal of Infectious Diseasesand the Journal of AIDS, and in a number of popular magazines. Delaney is also the co-author of Strategies for Survival, The Gay Men’s Health Manual for the Age of AIDS and editor of the Project Inform HIV Drug Book. His work and the history of Project Inform have been described in several books, including Acceptable Risks, by Jonathan Kwitney; Against the Odds by Peter Arno and Good Intentions by Bruce Nussbaum.
“Through his work at Project Inform to increase awareness about HIV/AIDS treatment opportunities and challenges, Martin Delaney leaves an extraordinary legacy,” said Speaker Nancy Pelosi. “Access to the information Martin committed his life to sharing has literally been the difference between life and death for millions. Dr. Anthony S. Fauci, Director of the National Institute of Allergy and Infectious Diseases, said it best when he called Martin a public health hero. San Francisco mourns his loss.”
Dr. Fauci, who leads the federal agency responsible for research and drug development for HIV, on January 11 issued a Special Recognition Award to Delaney. “Millions of people are now receiving life-saving antiretroviral medications from a treatment pipeline that Marty Delaney played a key role in opening and expanding,” said Fauci. “Without his tireless work and vision, many more people would have perished from HIV/AIDS. As a treatment advocate and activist, Marty always was keenly analytical, well-informed, articulate, persistent, tough-minded, gracious and fair. NIAID thanks him for his advice, his boldness in asking hard questions, and for the countless hours he devoted to helping NIAID in the fight against HIV/AIDS. He was a formidable activist and a dear friend.”
“There will never be another Martin Delaney,” said Lynda Dee, founder of the AIDS Treatment Activist Coalition, “He was the first AIDS activist, the trailblazer. Marty taught so many of us in the community how to be treatment activists. He will be sorely missed by community and by so many researchers. AIDS research would not be at this successful juncture without his vision and perseverance. Marty is one of the true heroes of our movement. His example will always be with us.”