Guide to HIV/AIDS Related Resources
September 2008 View PDF En español
Access to care and treatment
AIDS
Treatment Data Network (ATDN)
An information clearinghouse for HIV meds, opportunistic infections,
cancer and hepatitis for Medicare, Medicaid, ADAP and national
pharmaceutical patient assistance/expanded access programs.
611 Broadway, #613, New York, NY 10012;
phone 800-734-7104 (NY state), 212-260-8868; email network@atdn.org; English.
Centers
for Medicare & Medicaid Services
Programs and information related
to Medicare, Medicaid and State Children’s Health Insurance
(SCHIP) programs.
English.
Families
USA
Works to promote high-quality, affordable
health care for all Americans. Website provides health care information
including a consumer clearinghouse on US health care.
1201 New York Avenue, NW, Suite 1100, Washington,
DC 20005; phone 202-628-3030; fax
202-347-2417; email info@familiesusa.org; English.
Kaiser
Family Foundation
Focuses on US health care issues and provides
information free of charge — from understanding Medicare
benefits and improving one’s health to policy research and
basic facts and numbers on health care.
phone 650-854-9400; fax
650-854-4800; English.
Medicare
Provides information on Medicare prescription
drug plans throughout the US and other related issues such as billing,
coverage gap, formulary finder, etc.
phone 800-633-4227 (24/7); tty 877-486-2048; English
& Spanish.
Medicare
Rights Center (MRC)
Independent source of health care
information and assistance for people with Medicare. Helps older
adults and people with disabilities get good, affordable health
care.
English.
National
Health Law Program
Works for justice in health care for low
income people. Website provides online library for topics including
Medicaid, managed care, disability, the uninsured, etc.
Partnership for Prescription Assistance
PPARx offers access
to more than 475 public and private patient assistance programs,
including more than 180 programs offered by pharmaceutical companies.
phone 888-477-2669; English & Spanish.
Patient Advocate Foundation
Provides local, state and federal resources to people with life-threatening
or debilitating diseases regarding access to care, employment
and finances.
700 Thimble Shoals Boulevard, #200, Newport News,
VA 23606; phone 800-532-5274; fax 757-873-8999;
spanish 800-516-9256; email help@patientadvocate.org;
English & Spanish.
Rx Assist
Comprehensive database of patient
assistance programs, as well as practical tools, news and articles.
Free membership.
English.
Social
Security
Federal program pays retirement, disability
and survivors benefits to workers and their families, and administers
the Supplemental Security Income.
phone 800-772-1213; tty
800-325-0778; English & Spanish.
World
Institute on Disability
Helps workers, job seekers and service
providers better understand the connections between work and
benefits, and brings together rules for health coverage, benefit
and employment programs that people with disabilities use.
English.
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